Costa charity gala dinner to fight mitochondrial disease

Costa charity seeks to raise awareness of debilitating disease with gala dinner

LAST UPDATED: 2 Apr, 2015 @ 17:59
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A COSTA del Sol charity is hosting a gala dinner to help its fight against mitochondrial disease.

Talia
Talia

The debilitating physical, developmental and cognitive disease affects as many as one in 4,000, according to recent statistics.

Now non-profit organisation Service in Satchidananda is collaborating with the National Mitochondrial Association to host a fundraising gala dinner in San Roque, with talks from leading experts on the disease.

Vice-president Shanalle Bacarese-Hamilton, whose seven-year-old daughter Talia has a very rare mitochondrial disease, said they charity is determined to build a national register of patients.

““It really is the first step to  implementing change as there’s no cure at the moment.

“In the association there is a lot of love and support – we just want all patients to be known and supported.”

Mitochondrial disease saps the sufferer from energy to such a degree that organs and systems can be damaged with loss of abilities from walking and talking to swallowing.

Tickets cost €85 for the gala dinner – at Alcaidesa Golf Hotel on April 24 at 8pm – and include a DanceWorks performance, welcome drinks and a three course meal.

To find out more or buy tickets call 687799856 or email [email protected]



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